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Fears delayed dialysis unit may be shelved forever - Clacton and Frinton Gazette

Fears delayed dialysis unit may be shelved forever

THERE are fears a long-awaited dialysis unit for Tendring may not go ahead after years of delays.

The specialist treatment centre was originally due to open in Clacton in 2010.

But it has been repeatedly delayed, leaving patients having to travel to Colchester, Ipswich, Chelmsford or Basildon several times a week for the vital treatment.

Now NHS bosses say the plans may be shelved altogether.

They say advances in technology mean many patients can treat themselves in their own homes.

The news shocked MP Douglas Carswell, who had criticised the delays.

“I’m very surprised to hear about this possible change of plan,” said the Conservative MP.

“We were told we would have a specialist unit here, and at no point have we received an indication to the contrary.

“I will look forward to hearing the details when I discuss this with the NHS.”

In April 2011, the NHS said the new dialysis unit, in Kennedy Way, Clacton, would be open within a year.

Adrian Marr, director of resources at NHS North Essex, now says they want to provide renal services as locally as possible for people.

“The original idea of having a dialysis unit in Kennedy Way in Clacton has moved on with the advances in technology, but it could be a good location for technical back-up and training,” he said.

“The good news is that medical technology has moved on a great deal in this field and it is now possible to offer more renal dialysis for patients at home, if that is right for them clinically and personally.

“We expect to see many more patients receiving home dialysis next year.”

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NGO Raises Funds To Fight Renal Disease - Leadership Newspapers

The Kidney Care and Support Initiative, a Non-Governmental Organisation (NGO) has raised the total sum of N5, 035.000 and pledges of two dialysis centers in support of people living with Kidney diseases.

The fund raising took place yesterday during the first annual general meeting/ the fund raising of the organisation in Abuja where the Chairman, Board of Trustees of the organisation, Mr. Swani B. Gandu appealed for a more compassionate approach to issues related to renal disease.

Associating themselves with the goals of the organisation, the Chairman LEADERSHIP Newspapers Group, Mr. Sam Nda- Isaiah and the Chairman of Tak Continental Group, Mr. Thomas Etuh both made personal donations of One million naira each to the organisation.

In his remarks, Mr. Gandu said that most Nigerians have lost their lives to kidney diseases not because there is no treatment but for the financial burden that has been placed on them in the course of getting the treatment.

“The idea to set up this organisation came to me four years ago when I lost my kidney and have to be placed on dialysis for survival. The treatment has taken me to various cities and it was during these trips that I saw the sufferings of my fellow Nigerians.

“Though dialysis has been improved upon in Nigeria, the prices still differ in various dialysis centers and there are people who cannot afford them. Some of these people need this dialysis three or four times in a week. Most of these people are dying, not because there is no treatment, but because of the financial burden which has been placed on them. ”  

Stating the reason for the high rate of Kidney diseases in Nigeria, Head, Department of Nephrology, Jos University Teaching Hospital, Dr. Emmanuel Agaba,  represented by Dr. Gimba Mark revealed that hypertension, as well as drug abuse are the commonest causes of kidney diseases in Nigeria.

“The risk factors for kidney diseases are hypertensions, diabetes, and chronic glomeluron nephritis are usually the three commonest and diabetes is the commonest cause of kidney diseases worldwide, but hypertension and chronic are the most common in Nigeria. Also are lots of things that we do like use of drugs without prescriptions such as the pain killers, herbal medicines. ”

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Golf only part of aid for Lehi mother who needs transplant - Deseret News

Crystal Hadlock simply wants to breathe another day, hold her daughters and be a wife to her husband Chris. Anything else is extra — icing on the cake, firecrackers in July.

Golf charity events have long produced lump sums of money for good causes of every kind. But when Jeff Alexander invited me to stop by Sleepy Hollow Golf Course this week and peek in on his 54-hole golf marathon to raise money for Crystal, I was bowled over by the goodwill present that day. And when I talked to Chris Hadlock, I was humbled. My problems are nothing.

Just under two years ago, Crystal, her mother and two daughters walked away from an automobile accident. But it proved a blessing in disguise because after suffering lower back pain for weeks, she decided to have an MRI. It was then doctors found a renal artery aneurysm on her kidney. It could be deadly and had to be dealt with. The thing is, Crystal was born with just one kidney.

Last fall, she chose the best path for full recovery and quality of life, an auto transplant, where her only kidney would be removed, the aneurysm cut out and the kidney then transplanted back in her body, down by her pelvis. Trouble loomed. During the procedure, her only kidney died.

She found this out after being sedated for days, tied down to her bed, tubes hanging from her body and a fog slowly subsiding from her mind after a deep drug-induced sleep.

A talented professional photographer with angels for daughters, Crystal has fought a serious blood clot, nausea, strict diets, depression, multiple medications, fear, anxiety and medical procedure after procedure that has taken every bit of faith and strength she can muster.

Since then, Crytstal, 28, who hates to be stuck with needles, has survived on dialysis in hopes of receiving a donor kidney. Uninsured, her husband laid off from work and now a student, her fate is in the hands of divine providence and others who confidently walk healthy upon this earth.

This week I contacted Crystal to obtain a few photographs and she directed me to her blog (mynameiscrystalhadlock.blogspot.com). There, I found this account of her experience with the dialysis, the miracle that's kept her body functioning for more than half a year.

In her words, Nov. 22, 2011:

Dialysis is tough and slightly depressing. You go to a larger room with chairs circling the entire room. It smells of bleach and is lit with florescent lighting. The room is filled with old sickly people. I am the youngest, and one of the only women. I go Monday, Wednesday, Friday every week and have to be hooked up for 3 1/2 hours. In a chair. And yes I have terrible anxiety and it makes me feel claustrophobic. The good part is the chairs are heated which is a good thing because one of the effects I have with dialysis is I am FREEZING COLD! The first few times I had it I shook uncontrollably the whole time. I have really weird side effects from dialysis. Everyone is different. I get extremely tired, extreme nausea and vomiting, high blood pressure. My catheter site the skin got irritated so I had extreme itching and a rash. A lot of the time my entire body itches so badly I can barely stand it. Other times I have no side effects at all. So weird and so random. So I give thanks to the good days, which slowly are becoming more frequent.

That was seven months ago.

The best part of this story isn't that Jeff, the owner of Alexander's Print Advantage, hosted a golf marathon that raised more than $15,000 to help Crystal and Chris, his former employee. As impressive as that is, it got upstaged.

The best news is that Crystal's neighbors in her LDS ward (Pheasant Point Third Ward) stepped up and underwent testing to see if they could donate a kidney. A woman in her ward was a match and both women will undergo the transplant procedure on Tuesday.

The donor is Lisa Thayne, a regular young woman just like Crystal, whose priorities are beyond her own daily needs.

One day, about a month ago, after many neighbors had undergone testing, Lisa called and said she needed to talk to the Hadlocks. She came over and announced, "I'm a match and my kidney is yours."

"She is my neighbor in Lehi. She is an amazing person. She is a very humble, caring person and is actually the compassionate service coordinator in the Relief Society in our ward.

"Lisa is doing the most selfless act by giving me her kidney. She told me what helped her make her final decision to donate was one Sunday she saw how sick I was and how bad I looked and she thought to herself, 'What is two months of my life when I would be giving Crystal a lifetime of health?'

"Seriously," said Crystal, "who does this? Well, Lisa does. She has three kids and is my age. I am truly grateful and really at a loss for words about getting a kidney. We will have a bond for life."

Chris says he feels so grateful but also guilty. "On one hand I'm so grateful for Lisa but on the other hand, I feel almost guilty, that we've had our trials and I don't want this to mess up their family, too. It's an overwhelming feeling. It takes a special person to donate a kidney."

Crystal's life is in the balance. She has a long road ahead, even after Lisa's kidney is placed within her body. She's an artist with emerald eyes, a neon smile and an Irish temper, a woman whose only dream is to be there for those she loves and brought into this world.

Chris, 31, is a humble guy who is trying to finish school so he can support his family.

"We have faith and are grateful for all we've been given," he says. "We've had tremendous support and we're grateful for Lisa's sacrifice and the love of our neighbors. They've enabled me to continue going to school as we've tried to get two crappy things done at once."

For a few hours as I wandered around Sleepy Ridge that day and talked to folks who gave up their day to help Crystal as they tried not to slice, hook or duff shots, there was a real feeling in the air, something you could almost hold in your hands.

It was a block of hope, an element of kindness, a measure of goodness you feel when you put on a warm comforter, a discernment you cannot see with eyes. I'd never met Crystal but I knew her as if she was my own child or sister.

Suddenly the world became very small — and big at the same time.

Contributions to help the Hadlocks' medical expenses can be made to any branch of Zion's Bank through the Crystal Hadlock Fund.

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Renal woes land Kaka in hospital: Superstar's condition worsens as kidneys are ... - Daily Mail

Daily Mail

Renal woes land Kaka in hospital: Superstar's condition worsens as kidneys are ...
Daily Mail
According to exclusive information available to Mail Today, both kidneys of the 69-year-old actor have been severely affected.
Renal failure for Kaka? Deccan Chronicle

all 315 news articles »

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Renal woes land Kaka in hospital: Superstar's condition worsens as ... - Daily Mail

Daily Mail

Renal woes land Kaka in hospital: Superstar's condition worsens as ...
Daily Mail
According to exclusive information available to Mail Today, both kidneys of the 69-year-old actor have been severely affected.

and more »

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