The past 10 months have been an emotional roller coaster for the Colantonio family.
Now, they’re playing a waiting game, hoping their youngest daughter will follow in her sister’s footsteps in beating a life-threatening illness.
Back in August, just as she moved into her dorm for her sophomore year at Stonehill College, Nicole Colantonio, 19, was diagnosed with lymphoma.
Then in January, younger daughter Katelyn, 14, was diagnosed with kidney failure
“Are you serious,” Jim Colantonio recalled telling the doctors. “It can’t be true. She’s 14. How can she have kidney failure.”
Jim Colantonio and his wife Janet spent the month of January in hospitals.
“We used to get Kate set up on her dialysis at Children’s and then walk over to Dana-Farber and get Nicole set up on her chemotherapy,” Jim Colantonio said. “It was like a bad dream.”
Things were getting better for the Colantonios in January. Nicole was pronounced cancer-free, and tests were showing that Jim was a potential kidney donor for his daughter. They even had a date set for the operation, July 26, so Katelyn could recover in time to start her freshman year at Braintree High School.
Those plans were put on hold a week-and-a-half ago, when a test found Jim had a heart ventricle defect that ruled him out as a donor.
“We were convinced my husband was the donor,” Janice Colantonio said. “It was like having the rug pulled out from under us. We thought we were out of the nightmare.”
Added Katelyn, “It’s like we’re starting from the beginning again.”
Both Janice and Nicole have type A blood, and could not be donors.
For now, Katelyn spends three days a week undergoing dialysis while awaiting a new kidney and living under tight restrictions. She can only drink a liter of fluid a day, and can’t shower or get wet due to a port in her chest. A tennis player since she was 4, Katelyn can’t play sports.
“The worst is the food restriction,” Katelyn said.
Nicole and family members are pitching in to help get Katelyn back and forth for her treatments.
Despite her treatment, Katelyn been able to keep up her studies and is honor roll student.
“She’s positive, she still goes out with her friends,” her mother said.
While Katelyn is on the list for a kidney transplant from a cadaver, the family is hoping to find a living donor.
Janice Colantonio said the average life of a kidney taken from a cadaver is 10 years, while one from a living donor can be 25 or more years.
“We hope to have her have this surgery once in her life,” she said.
The family is seeking people to volunteer to be tested as a possible donor. Nicole Colantonio has created a Facebook page to publicize her sister’s situation, and has also reached out to the people who supported her during her illness with a posting on her Carepage.
“I love my sister above all,” Nicole wrote. “I would do anything to see her well again.”
Janice Colantonio said that people have already started reaching out to the family, for which they are grateful.
An ideal donor would be between 21 and 65 years of age with type O blood, either positive of negative.
Anyone interested in being tested as a donor can e-mail the family at
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The family’s medical insurance will cover transplant costs.
The family said they feel lucky to live so close to top medical centers for their daughters’ treatment.
“We’re looking forward to being on the other side of this,” Janice Colantonio said.
Jim Colantonio said the past year has given the family a new motto.
“What doesn’t kill you makes you stronger,” he said.
Fred Hanson may be reached at
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