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Kamal Shah
Hello, I'm Kamal from Hyderabad, India. I have been on dialysis for the last 13 years, six of them on PD, the rest on hemo. I have been on daily nocturnal home hemodialysis for the last four and half years. I can do pretty much everything myself. I love to travel and do short weekend trips or longer trips to places which have dialysis centers. Goa in India is a personal favorite. It is a great holiday destination and has two very good dialysis centers.
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Pump up your dialysis speed!
The higher the blood pump speed, the better your blood gets cleaned by the artificial kidney. This is mainly because with higher pump speeds, more blood gets drawn and put through the artificial kidney which allows the artificial kidney to remove more and more toxins from the blood.
This is a picture of the blood pump from a Fresenius 4008S machine and the number '195' in the picture is the pump speed.
So, as someone on dialysis, it is in our interest to have the highest blood pump speed that our body and vascular access can tolerate and is required. Note that this is true only for people on conventional in-center dialysis who come twice or thrice a week. For those on daily dialysis, the pump speed can be lower to give a more gentle dialysis.
Many people complain that they do not feel 'good enough' on dialysis. This could be because they are not getting enough clearance or not enough toxins are being removed by dialysis. Ideally of course, the frequency of dialysis or the duration of the session must be increased. But if that is not possible, the next best alternative is to increase the blood pump speed. This will result in increased clearance and the person feels better.
Technicians and nurses sometimes do not risk high blood pump speeds because it can lead to some complications. However, they should gun for the highest pump speeds that the patient can tolerate. The pump speed must be gradually increased and if the patient does not complain of any problems and good flows are obtained (no air bubbles appear in the arterial line), then the pump speed is all right.
A word of caution though: every change in pump speed must be signed off by your nephrologist as every individual is different and may have different conditions (especially cardiac related) which may necessitate a different line of action.
But this is something definitely worth considering and talking about with your nephrologist and your technician or nurse.
... http://www.kamaldshah.com/2012/04/pump-up-your-dialysis-speed.html
Hope on the horizon for dialysis patients: Clinical trials begin on the WAK
To be very honest, I did not expect this to happen for a few years. But to mine and everyone else's surprise, this program was recently announced and the WAK was one among the devices chosen! More details on how the clinical trials are going to be held are given in Dr. Peter Laird's blog here. I quickly did the math on the slide on Dr. Laird's blog and found that in less than a year the clinical trials are going to be completed. That is of course, assuming that the different stages will happen immediately one after another. That may not be the case. Two years maybe, then? Still not bad!
Here is a picture of the WAK:
... http://www.kamaldshah.com/2012/04/hope-on-horizon-for-dialysis-patients.html
Dialysis pricing conundrum
As a patient, I feel pricing should be as low as possible. It is, as it is, an expensive treatment. How can ordinary people afford the treatment if the prices are too high?
However, if prices are too low, can quality really be maintained? Can people who value quality and are interested in providing quality remain in business if the prices fall too low? Yes, this may seem like a lame argument from someone who earns his living from dialysis. But think about it without being biased. It is true.
There are dialysis providers at both ends of the spectrum and many in between. The problem comes when people start expecting quality from the low priced providers and low prices from the quality providers. The unfortunate truth is both quality and low price are simply not possible together.
We must remember a simple truth. Businesses are here to make money. Whether it is the restaurant business, the movies business or the healthcare business. Everyone is there in it for the money. Despite tall pretentions of doing good, the primary motive is money. Satisfying taste buds might be a by-product. Entertaining people might be a by-product. Providing quality healthcare might be a by-product. The primary motive is to make money. Neither the providers nor the customers should ever forget that.
When it comes to charity organizations, we must remember the primary motive is not quality. The primary motive is to benefit as many people as possible. The primary intention is to reach people who need the treatment. So, you cannot expect any frills. You should be happy to get the basic dialysis treatment. Which is also all right because at least people continue to get dialysis. People, who otherwise might have died from lack of dialysis are alive because of this.
When we accept these two aspects, the rest follows easily.
... http://www.kamaldshah.com/2012/04/dialysis-pricing-conundrum.html
The winds continued to blow, the sun continued to shine
Not one thing changed because Chandrashekhar died.
The smiling 20-something year old on dialysis finally lost his battle with kidney disease. It struck me as weird that I was at a party that evening. It struck me as weird that people around me were all having a ball. The cake was cut. Snacks were served. There was laughter all around.
Not one thing changed even though Chandrashekhar died.
For Chandrashekhar, it was the end. That was it. There was no more. His entire life had ended. For the management at his dialysis center, his name got added to a report. A certain count got increased by one. And everyone moved on.
Not many of us realize how the world simply continues to function even after someone dies. After someone I have known dies, I find it very strange that birds continue to fly in the sky as if nothing has happened. People on the road go about their daily chores like nothing has changed.
For the individual however, it is all over.
As I keep hearing about one loss after another, all I feel is lead in my heart.
... http://www.kamaldshah.com/2012/04/winds-continued-to-blow-sun-continued.html
NephroPlus comes to Bangalore
... http://www.kamaldshah.com/2012/04/nephroplus-comes-to-bangalore.html